Yesterday was an awesome day. We are really seeing the change happen in him regarding the steroids getting out of his system. Since Thursday, which was his spinal and bone marrow (as well as the last day of the steroid), he hasn't wanted to let us walk him to/from locations in the house. We attribute that mostly to the bone marrow biopsy since it looked pretty rough from the poke marks on his lower back, and some bruising. He didn't even want to sit himself up from his bed as he normally does when he wakes up. Sunday he did sit himself up after nap, but still did not want to walk. Dan and his Dad were working on the parking strip out front in the afternoon and I took Oliver outside on the front step to watch. He enjoyed himself and kept yelling "Jichan" while watching him work with a hammer and bricks. Just getting him outside (off his couch spot really) was a big plus.
Yesterday in the morning, he sat himself up in bed again himself. Still not wanting to walk however. Then later on in the morning, he rolled to his stomach and got off the couch to sit on the floor all on his own accord. I joined him and we played copy cat for a bit (he loves it when you copy him being silly). I tried to incorporate some leg movements with this. He then wanted back on the couch so I stood him up and he climbed up himself.
After nap, he sat up again. Still wanted me to carry him, but we sat in his room for a bit (he was on my knee), and I had a talk with him about how it makes me very happy when he walks, etc etc (not to mention he is pretty heavy now and mommy can't be lifting him so much with his little brother in her belly). He twirled my hair while listening and nodding which was cute. I waited a bit longer then asked him again if he would "walk for mommy please" and he said "ok". I was shocked actually. So I held his hands and we walked to the couch from his room. Later on that day we were sitting outside on the step chatting with our friends next door. Before all this, Oliver would just help himself to walking up to their door and knocking on it, to go right in and play with his friends toys in their house. He wanted to go over there this time, so we walked over and up the stairs (the stairs were really rough for him). We played there for a good hour. He had a great time.
Today he has an at home Physical Therapist coming provided by our insurance. You see, he's regressed so much he can't really walk without support for very long. The extra weight he put on also threw off his balance with all that, and the weakened state of his leg muscles. Not to mention some of the meds mess with all this as a whole. He will get back to his running/jumping self again, it will just take time and work.
Coincidentally, when Oliver had a PT from the services we received during his 0-3 age (as you move up to school district at age 3), the PT he had started working for the at home service from our insurance so I was pushing in trying to get her as his PT again and we did get her! She was Oliver's PT for 2 years ending in August of 2010 when he started with the school. She came over last week to asses things and will be in today sometime for a visit as well. He does need this.
Tomorrow we see his Oncologist and go over the next round that starts Thursday if his counts for tomorrow's blood draw allow it. His ANC must be over 750 (they were 650 last week on Wednesday) and platelets must be over 75,000 (he is well in normal range on this number so we don't see any issue there). Otherwise we just get delayed until the numbers are what they need to be at start.
Oh and he isn't talking food every waking minute anymore. In fact I think he was confused yesterday why he would still talk food a little more but then not really want it at all since he had gotten used to asking or talking about food nonstop.
