Olivers ANC is 2432 today, and his overall WBC is 3.2 (both up from Monday).
His RBC is 3.83
HGB at 12.2
and Platelets at 219K
Oliver saw his cardiologist last week which he had an EKG before hand for. All looked ok and he sounded fine.
However, his cardiologist did not know he had an ECHO back in the fall ordered by Oncology and looked at by another doctor.
No one ever told us anything of that ECHO. He had to have one to see if there are any differences after his treatments are all done.
We just assumed that if no one said anything, all was fine, but I brought it up at his routine appointment he had (because of his heart surgery at 4 months) - His assigned cardiologist then called to tell me he saw a tiny little hole where his patch is that corrected the large hole he had. He said it wasn't that significant, and could resolve on its own. The only thing is said was he is back on needed antibiotics when he sees the dentist (which he lifted, but because of the chemo, he has to anyway).
We were a little bummed to find this out, and a little upset that no one said anything to us of it, nor did it go to our regular cardiologist. Obviously if it were something needing attention, they would have flagged, etc.
Other than that, he is doing well. He's loving school. Today when we walked in, his speech therapist asked "how are you today?" and he replied with "I'm good".. :D
Then when we came home, I always ask him what he had for lunch to see if he remembers. "TACOS!" he exclaims. So I check the lunch calendar and it was indeed tacos! He sometimes will just say a food and it not be what it really was.
I can't believe it was a year ago this month when this all started! A WHOLE year has gone by. Its just crazy to think. However we have more than a whole year to go. At least we have that to look forward in the long term. Once July 6th comes this year, I will start the 365 day count down!
Monday is the start of a 12 week cycle again. Lumbar puncture (spinal), then to the clinic to get chemo via IV - and 5 days of the fun steroid.
We are probably going to just do weekly labs, if not every 10 days unless there is a problem. As time goes on, it can get further apart, but I think my max is 2 weeks to know since as we can see, anything can happen.
He will been seen once a month as always.
Oh and we also found out that he has no issue metabolizing that daily oral drug, so no change in that. He was probably fighting off something which caused his counts to go down and stay for a while. Who knows exactly though.
We are happy that his counts actually went slightly up since starting back up on the meds again.
Probably no update until a week past this coming Monday unless they wanted to do labs earlier (like Thurs or Fri of next week, but I doubt it - they would normally just do them once a month but because Oliver is at higher risk of infection, we may never get to that point during his treatments).
Have a great weekend!
